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Showing posts with the label juvenile arthritis

Some Common Misconceptions About My Juvenile Arthritis

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There are a number of big misconceptions that I encounter as a teen living with   juvenile idiopathic arthritis. I have  seropositive polyarthritis, which is the type that's most similar to  adult  rheumatoid arthritis . One misconception is that kids don't get arthritis. Wrong! It's a different kind of arthritis, yes, but it is just as serious, if not more. Another is that if I don't have visible inflammation, then I must be either faking or it's not that bad. This is so incorrect! My arthritis is thankfully not visible, but that doesn't mean it's not there. It means that I need to get it under control BEFORE it deforms my joints. Once they're deformed, it's too late. I even have erosions on my bones already, but the average person can't see that. It's only seen through a specialized scan, like an MRI. So the fact that my fingers don't look like sausages is not a reason to say that I'm "just lazy," especially when I'm t

I Went To My First AA Meeting! Plus, It's Juvenile Arthritis Awareness Day

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Recently, I've had to switch medications for my juvenile rheumatoid arthritis. I was on a medication called hydroxychloroquine (yes, the same one that made the news for Covid-19...), which I later found out did nothing to help my disease progression. I then switched to a wonderful new doctor who specializes in pediatric rheumatology who suddenly made everything make sense. I'll spare you the elaborate details, but suffice it to say that my previous rheumatologist had diagnosed me with adult rheumatoid arthritis and was treating me as such, regardless of the fact that juvenile and adult arthritis are diagnosed and treated completely differently.  So I was obviously pretty bummed to hear that I spent nine months on a medication that was useless. My new doctor put me on a med that I got excited about, called meloxicam. It was not a very serious medication, an NSAID, but would hopefully bring down my persistent swelling, pain and inflammation. But of course, there was a catch: I co

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